Information, Education, Support and Advocacy for
Families, Children, Teens and Adults Who Are Living With The Challenges of
Congenital Anorectal, Colorectal or Urogenital Disorders




 

Welcome

Pull-thru Network (PTN) was founded in 1988 and has grown to be one of the largest organizations in the world dedicated to the needs of those born with an anorectal malformation or colon disease and any of the associated diagnoses.  These diagnoses include:

♦Imperforate Anus, ♦Cloaca, ♦Cloacal Exstrophy, ♦Anal Stenosis, ♦Bladder Exstrophy, ♦VACTERL/VATER Association, ♦Hirschsprung's Disease, ♦Tethered Spinal Cord, ♦Neurogenic Bladder, ♦Caudal Regression, ♦Down Syndrome, and ♦others

Despite the differences in diagnoses, the members of Pull-thru Network are bound together by a common need for information, education, support and advocacy for families, children, teen and adults who are facing the challenges of these diagnoses.  We invite you to take a look at the programs and services provided by Pull-thru Network and encourage you to take advantage of all that is available by becoming a PTN member.  Membership is required for participation in many of the features of this website.  By requiring membership, Pull-thru Network is protecting your and your child's privacy while facilitating an open exchange of information between members.  

If you have any questions, or need additional information, please do not hesitate to let us know. Contact us at: pullthrunetwork@gmail.com  Phone: 309-262-9786

Lori Parker, Executive Director, Normal, Illinois

Hollie Filce, Associate Director, Hattiesburg, Mississippi

Carmell Burns, Director, Paradise, Utah

Tenley Gritts, Director, Chula Vista, California

Tricia Mihalic, Director, Traverse City, Michigan


News, Updates and Events

Gynecological Concerns in Girls Born with Anorectal MalformationsNew

Dear Parents,

We are conducting a research study to obtain Information from families whose daughters have an anorectal malformation so that we can improve care for these patients. The information that you share will help us recommend practices that we hope will better serve families faced with similar health care issues in the future.   There is no direct benefit to you or your daughter whether you choose to fill out and return the questionnaire or not.   There will be no change in the care that you or your daughter receives.

The attached questionnaire has been approved by our hospital’s Institutional Review Board (IRB), a large committee that reviews studies to make sure that they protect the rights and privacy of the children and families involved.  It should take you approximately 5 minutes to complete.  Your name is not associated with the questionnaire and all responses are anonymous.  Please do not put your name or any other identifying information anywhere on the questionnaire.  Completing this questionnaire is completely voluntary and you can stop filling it out anytime you want. 

By completing the following survey, you are giving your consent for this information to be included in our research study. The link to the survey is https://www.surveymonkey.com/s/XTGRFJ7   .  We appreciate your feedback and encourage you to contact us if you have any questions.  You can reach Debbie Morse at debbie.morse@cchmc.org or 513-803-0090.

Sincerely,

Debbie Morse

Christie Stewart

Sarah Braukman

Kathleen Whitehead


PTN Member Chat

 Join us every 4th Sunday in the chat room (see link in menu bar) at 8pm Central Time!

Sunday, November 23, 2014
 

 
 

 

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