for
Families, Children, Teens and Adults Who Are Living With The Challenges of
Congenital Anorectal, Colorectal or Urogenital Disorders
INVITATION FOR PARTICIPATION IN A RESEARCH STUDY
Pediatric Urology, Brady Urological Institute
600 N. Wolfe St, Marburg 149, Baltimore, 21287, USA
We are researchers at the Johns Hopkins Brady Urologic Institute. Our research involves studying the causes of epispadias, bladder exstrophy and cloacal exstrophy. Our ultimate goal is to identify genes and environmental factors causing these conditions. We would like to invite families, who have a child with this condition to participate in our study.
If you agree to participate each family member will need to sign a consent form. We will arrange for a clinical examination and blood sample collection from the child and his or her biological parents. These samples will be prepared so that we will not need another sample in the future. The families will not benefit directly, but we hope by learning about the causes of bladder exstrophy that some day we will be able to provide better care to patients.
The results of our study will be published, but the participants will be coded by identification numbers and will remain anonymous. These families will also be asked to participate in a survey, designed to identify environmental factors that may cause bladder exstrophy. All responses to the questionnaire will be kept confidential. There will be no charge to participants in the study.
If you are interested in participating or if you have any questions regarding this study, please contact Nelly Morales (Study Co-ordinator) by telephone at (410) 502-3626, or e-mail (nmorale2@jhmi.edu) for additional information and to make arrangements.
Thank you for taking the time to consider participating in this study.
Sincerely, Yegappan Lakshmanan, M.D. Assistant Professor of Pediatric Urology (Principal Investigator)
John P. Gearhart, M.D. Professor and Director of Pediatric Urology
Ranjiv Mathews, M.D. Associate Professor of Pediatric Urology
Simeon Boyd, M.D Department of Genetics UC DavisHealthCenter
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